If you have Myeloma, my family and I feel that this is the very best place to be for treatment. This conclusion came after much research. Dr. Bart Barlogie is Director of the Myeloma Institute for Research and Therapy. His staff of outstanding doctors, nurses, office personnel and volunteers gives out huge helpings of hope. Remember that together the doctors review each patient treatment for you as an individual. There is much for the patient to learn but there doesn’t seem to be a need to jump too far in the future. They are making advancements every day – remember to take it one day at a time.
Perhaps the one thing that has helped me the most on a personal level is The Myeloma Support Group. They meet on Wednesday at 5:00 pm to 6:30 pm at the UAMS Family Home at 4300 W. Markham (across from UAMS). The staff are wonderful at answering questions concerning this group (501-978-2900). The social workers do a fantastic job of leading the group. Sharing your thoughts and concerns with other patients is very helpful. They are willing to tell of their journeys and answer many questions. It is so encouraging to talk with new friends that have been in remission over a dozen years!
Maps are available and everyone at UAMS seems willing to help you find your way around. Wear comfortable clothes and shoes – there will be some walking. There will be waiting for appointments and tests. Take something to snack on, something to read, an activity or visit with other patients. Remember that you are waiting for the best care available – it is certainly worth the wait!
Keeping a journal may be helpful. Make a list of questions. Be involved in your care. Let your attitude be gratitude – there are blessings in each and every day.