A diagnosis of multiple myeloma can be difficult and overwhelming for patients and their loved ones. We offer numerous resources and services that can help make the journey a bit easier. We invite you to read about them below.
As you learn more about the Myeloma Institute, we hope you will keep in mind these special features of our program:
Social Work Services
The Myeloma Institute Social Work Department offers patients and their families a variety of services to meet your psychosocial needs. From the onset of your treatment our social workers are available to provide advocacy services, resource navigation, and emotional support to both you and your loved ones. The department is staffed by three full time social workers and two patient navigators providing services such as individual, family, and group therapy; financial aid counseling, local housing and transportation resources; national support organizations and programs; and referrals for allied healthcare services and discharge planning if you’re hospitalized at any point during your treatment. You can reach the social workers at 501-686-8145 or you can ask the front desk for assistance.
“MIRT Connection” Program–Experienced Patients Available to Assist New PatientsThe Myeloma Institute has enlisted a group of experienced patients to serve as advisors and sounding boards for new patients. Experienced patients know better than anyone what new patients are going through. They can be good listeners, offer advice, and alleviate concerns. The program is purely optional. New patients who would like to be contacted by a long-term patient can let the Intake Office know. We will then arrange for one of the experienced patient volunteers to contact the new patient. Call either of these phone numbers for more information: 888-693-5662 or 501-686-7105. Learn more.
Seed of Hope
The Seed of Hope sculpture, located on the first floor of the Winthrop P. Rockefeller Cancer Institute, is a symbol of hope and healing for patients. When a patient reaches a milestone in their treatment he or she is presented with two seed-shaped tokens. One token is placed in the sculpture as a celebration, and the other is taken to keep or pass along as a symbol of hope. Click here to learn more about the Seed of Hope.
These informative question and answer sessions with Myeloma Institute doctors, designed for patients and caregivers, are usually held the second Thursday of each month, from 6:00 – 7:30 p.m. We will announce details for each meeting a week or two before the event, and we hope you can join us!
Upcoming MIRT Meet dates for 2014:
The Patient Navigator is a handbook that is designed to provide information to help patients as they progress through their course of treatment.
Helpful Hints – Patient to Patient
Patients tell the story of dealing with myeloma better than anyone else. They live the process. They develop ways to cope. The following pages include tips and pointers and messages of inspiration from Myeloma Institute patients. They share their thoughts in the hope that other patients will find them helpful. The patient to patient bond can be one of the strongest. All of us at the Myeloma Institute encourage this special bonding. If you would like to add your thoughts and advice, please let us know. We would be happy to hear from you. You can e-mail us, or send us something in the mail:
Director of Communications
4301 West Markham
Little Rock, AR 72205
Patient Education Classes
New Patient Orientation (designed for new patients) Monday, 3:00 – 4:00 pm Wednesday, 3:00 – 4:00 pm
Classes are held every week in the Strauss-McCaskill Classroom on the 10th floor of the Winthrop P. Rockefeller Cancer Institute. Classes are open to patients, family members and caregivers.
Myeloma Volunteer Program
Specially trained volunteers assist new patients on their first day of diagnostic testing by escorting them to appointments. The MVP volunteers, also known as “Most Vital Pals,” help new patients navigate the campus as they provide warm and welcoming hospitality.
Understanding Cancer Series (NCI)
A series of tutorials available from the National Cancer Institute provide information on a wide range of cancer topics.
Sonja R. Thornes can assist with questions you may have about your appointments or concerns related to your visits. Sonya can be reached at 501-650-0193 or SRThornes@uams.edu.
Bone Marrow Transplant Support Group
Meets every Wednesday, 5 p.m. – 6:30 p.m., UAMS Family Home, 4300 Markham Street (at corner of Markham and Rose Streets)
High-Risk Support Group
Meets every Monday, 5:45 – 7:15 pm, UAMS Family Home, 4300 Markham Street (at corner of Markham and Rose Streets). High-Risk Patients, Caregivers, and Adult Family Members are encouraged to attend.
The Health Information Management Department at UAMS fulfills requests for release of medical records for all patients at UAMS except those cared for at the Psychiatric Research Institute. For more information, please contact the UAMS Release of Information office at 501-603-1520. The fax number for requests is 501-686-8361.
The Behavioral Medicine Program focuses on the interaction between medical and psychosocial aspects of cancer. Patients are provided with self-management skills to reduce stress, improve coping, alter behavioral risk factors, and enhance quality of life. Please call 501-686-8700 or visit this page for more information.
We have arrangements with a number of hotels in Little Rock for special rates and services to Myeloma Institute patients. Additionally, for those patients who may have extended stays in Little Rock, there are apartment complexes that make furnished apartments available to our patients. We can help arrange lodging needs to maximize comfort and convenience. Read more about area hotels and dining options here.
Patient Resource Center
The Joe T. and Jo Ellen Ford Patient Support Pavilion provides educational information and resources to patients and family members. Most patients find their situations easier to handle when they know the facts. The Patient Support Center offers the latest information about prevention, diagnosis and treatment. It is located on the 1st floor of the Cancer Institute and is open weekdays from 8:00 a.m. to 4:30 p.m.
Our financial counselors are available to assist patients in dealing with insurance companies throughout the entire treatment process. They are knowledgeable about billing, disability, and health insurance policy issues. We recognize that, in addition to medical and hospital expenses, there are travel, lodging and meal expenses, as well as expenses that may be required for child care, or that result from the patient’s spouse needing to be away from work for an extended period. We offer assistance in these areas as well.
Translation and Interpreting Services
The UAMS Office of Translation and Interpreting Services is part of the Medical Center’s Special Services Department International Division in the Center for Patients and Families. The Office of Translation and Interpreting Services translates patient education materials, forms and other written materials and provides one-on-one interpreting services in Spanish for non-English speaking or limited English proficiency patients.
One-on-one interpreting services are available from 8:30 a.m. to 7:30 p.m. Monday through Friday. To request services during these hours, please page 501-405-4691. The Professional Language Phone Line at 800-225-5254 provides after-hours interpreting services and interpretation of more than 30 languages.
The Winthrop P. Rockefeller Cancer Institute and UAMS Volunteer Services and Auxiliary support patients and families by offering extra help, care and concern. The Cancer Institute and UAMS Volunteers also sponsor gift shops located on the first floors of the Cancer Institute and the hospital. More than 300 Cancer Institute volunteers work at the Cancer Institute and Myeloma Institute on a regular basis or help with special events each year. For information, call Janie Lowe at 501-686-7828.
Patient Web Pages
CaringBridge is a non-profit organization that has offered free Web pages to those receiving care since 1997. CaringBridge has grown steadily since then and by the beginning of 2003 had hosted more than 10,000 personalized pages, with more than 33 million visits, and more than 1.4 million guestbook entries. For more information go to CaringBridge.